Hello Everyone – Bereavement & Grief
On Saturday, I took my Dad to see my Mum at the nursing home, as you know I do. This time it had a sad difference to it as it was my Dads birthday on Sunday as well as Fathers Day (a belated happy Father’s day to all the Dads/Carers), I had to organise a card, pressie, cake and take to the nursing home so that my Mum could celebrate my dads birthday. Mum used to be the great organiser and nothing was ever forgotten for any of her children, grandchildren, family and friends, she was extraordinarily generous, thoughtful and giving. Mum just can’t do this anymore, she forgets all of this as well as not having the access she formerly had before the nursing home.
The cake went down well with us and there was over half left, then the old spark from Mum came and she gifted to the nursing home staff, as she wanted them not to miss out. On our way home we all agreed that we missed her former self very much and that we acknowledge we are grieving, it was my Dad’s first birthday without my Mum being there in nearly sixty years but we cheered him up with many pressies, all the grandchildren visited and he had a good day..
The Academy runs a workshop on Life After Caring. This workshop looks at preparing in the many ways carers have to about caring for someone with a terminal diagnosis, loved ones being supported palliatively or carer just wanting to be prepared and looking at all future options for the their loved ones and as importantly for themselves. Our workshop looks at different forms of advanced care planning, loved ones wishes and making sure how you can have difficult conversations on funeral planning. last of all we look at bereavement and grief, what next for carers and looking positively towards the future.
We have a workshop this Wednesday and there are some places still available. If you would like a place then email email@example.com or firstname.lastname@example.org
We are also starting a new Bereavement & Grief Peer Support Group on 2nd August for Carers who are bereaved, grieving for a loved one who has passed but we are also including carers who have loved ones still with us but have a Dementia or terminal Illness diagnosis and are who are grieving this process.
Dementia, Alzheimer’s and Grief
It is common for caregivers to have feelings of loss and grief as their life is changed by Alzheimer’s. You are entitled to these emotions and may start to experience them as soon as you learn of the diagnosis. Share your feelings and seek support as you go through this process.
Feelings of grief
It’s normal to feel loss when you care about someone who has Alzheimer’s disease. It’s also normal to feel guilty, abandoned and angry.
Alzheimer’s gradually takes away the person you know and love. As this happens, you will mourn him or her and may experience the different phases of grieving: denial, anger, guilt, sadness and acceptance. The stages of grief don’t happen neatly in order. You may move in and out of different stages as time goes on.
Some common experiences in the grieving process include:
- Hoping that the person is not ill
- Expecting the person to get better
- Convincing yourself that the person has not changed
- Attempting to normalize problematic behaviours
- Being frustrated with the person
- Resenting the demands of caregiving
- Resenting family members who cannot or will not help provide care
- Feeling abandoned
- Having unrealistic expectations with thoughts like: “I should have done …” “I must do everything for him or her” or “I must visit him or her every day”
- Feeling bad because you are still able to enjoy life
- Feeling that you have failed if, for example, you cannot care for the person at home
- Having negative thoughts about the person or wishing that he or she would go away or die
- Regretting things about your relationship before the diagnosis
- Feeling overwhelmed by loss
- Crying frequently
- Withdrawing from social activities or needing to connect more frequently with others
- Withholding your emotions or displaying them more openly than usual
- Learning to live in the moment
- Finding personal meaning in caring for someone who is terminally ill
- Understanding how the grieving process affects your life
- Appreciating the personal growth that comes from surviving loss
- Finding your sense of humour
- Asking for and accepting help from others
This Weeks Activities …
Check out the https://ccth.org.uk/calendar/
Don’t forget this Wednesday, come and have your say
Wednesday 22nd June 2022 – is the Carers Forum 11am to 1pm
We have two presentations:
1. Are you a carer for someone with a Learning Disability and if so, we have a senior consultant who is looking at the Health Needs Assessment for people with Learning Disabilities living in the boroughs of Tower Hamlets, Newham and Hackney. We are particularly interested in understanding the specific health and social care needs of people with learning difficulties and their carers who access or need to access local services and organisations such as the Carers Centre.
2. We have a presentation on what carers want from a Carers Passport and here is a starting point – The Carers Passport would be recognition with the use of a physical tool (such as a plastic card) which easily identifies someone as a carer. This can be for reasons of practicality, to avoid repeating your story to each service, but also because it can help avoid the labelling of the person being cared for.
The Carers Centre Tower Hamlets is looking for a Carers Support Advocate
Do you want to be part of a team where you can support unpaid carers to know and access their rights and entitlements?
Do you have skills that can help a diverse community of carers to understand think about themselves, identify their needs and enable them to access the support they need?
Are you able to communicate with a broad range of people either written, verbally and face to face? Are you able to keep excellent records, encourage participants to feedback their experiences and keep up to date records via our database?
We want you to uphold our policies and procedures, be part of our team and attend team meetings and contribute your thoughts, as well as be able to work flexibly both at the centre and in outreach settings.
You will be supported, line managed, and supervised by the Advocacy Team Manager and you can contribute to the direction and aims of the Carers Centre Tower Hamlets.
Please inform us if you need any reasonable adjustment when undertaking this recruitment process.
Click link and find out more and get application form and job description
Cost of Living Payment
Guidance on getting an extra payment to help with the cost of living if you’re entitled to certain benefits or tax credits.
You may be able to get a payment to help with the cost of living if you’re getting certain benefits or tax credits.
You do not need to apply. If you’re eligible, you’ll be paid automatically in the same way you usually get your benefit or tax credits. The payments will be made separately from your benefit or tax credits.
These payments are not taxable and will not affect the benefits or tax credits you get.
You may get a payment of £650 paid in 2 lump sums of £326 and £324 if you’re getting any of the following:
- Universal Credit
- income-based Jobseeker’s Allowance (JSA)
- income-related Employment and Support Allowance (ESA)
- Income Support
- Pension Credit
To get the first Cost of Living Payment of £326, you must have been entitled to a payment (or later found to be entitled to a payment) of either:
- Universal Credit for an assessment period that ended in the period 26 April 2022 to 25 May 2022
- income-based JSA, income-related ESA, Income Support or Pension Credit for any day in the period 26 April 2022 to 25 May 2022
The second payment of £324 will be paid later in the year.
If you have a joint claim with a partner, you will get one payment of £326 and one payment of £324 for your joint claim.
You will not get a payment if you get New Style Employment and Support Allowance, contributory Employment and Support Allowance, or New Style Jobseeker’s Allowance, unless you get Universal Credit.
When you’ll be paid
Most of the first payments of £326 will be made between 14 July 2022 and the end of July 2022. We will update this guidance when payments have been made.
You’ll get the second payment of £324 in autumn 2022, if you’re entitled.
If you also get a qualifying disability benefit, you may get an additional Disability Cost of Living Payment.
You may get a payment of £650 paid in 2 lump sums of £326 and £324 if you have an award of any of the following:
- Child Tax Credit
- Working Tax Credit
To get the first Cost of Living Payment of £326, you must have received a payment, or an annual award of at least £26, of tax credits on any day in the period 26 April 2022 to 25 May 2022.
We will update this guidance when the government has announced the qualifying dates to get the second payment of £324.
If you have a joint claim with a partner, you will get one payment of £326 and one payment of £324 for your joint claim, if you’re entitled.
If you get both Child Tax Credit and Working Tax Credit, you will receive a Cost of Living Payment for Child Tax Credit only.
If you get tax credits from HMRC and a low income benefit from DWP, you will get a Cost of Living Payment from DWP only.
When you’ll be paid
You’ll get the first payment of £326 from autumn 2022 and the second payment of £324 from winter 2022, if you’re entitled.
If you also get a qualifying disability benefit, you may get an additional Disability Cost of Living Payment from DWP.
You may get a lump sum payment of £150 if you’re getting any of the following:
- Attendance Allowance
- Constant Attendance Allowance
- Disability Living Allowance for adults
- Disability Living Allowance for children
- Personal Independence Payment
You must have received a payment (or later receive a payment) of one of these qualifying benefits for 25 May 2022 to get the payment.
When you’ll get paid
You’ll get the payment from September 2022.
Join us for a free clothes swap with mending and upcycling workshops
Did you know that a staggering 350,000 tonnes of wearable clothing, that’s around £140 million worth goes for disposal every year in the UK? Clear out your wardrobe and join SunnyJar Eco Hub, Friends of the Earth Hackney and Tower Hamlets Council Recycling Team. Help tackle clothes waste and pick up some fabulous pre-loved pieces at this fun, free sustainable event!
This event will be happening at The Mulberry Hall, St Margaret’s House, 21 Old Ford Road, E2 9PL on Saturday 25 June from 10:30am – 1:30pm.
West End Live
The West End’s free outdoor extravaganza returns for 2022
Musical theatre fans, get ready for outdoor dancing and sing-a-longs with some of the West End’s biggest stars: West End Live is back! It’s the initiative that turns some of the most expensive forms of entertainment in London into the cheapest fun going. Each year, casts of some of London’s best West End musicals emerge blinking into the open-air for a weekend of free alfresco performances in Trafalgar Square, accompanied by fun photo ops, merch stalls, and bags of showbiz atmosphere.
After cancellation in 2020 and a later-than-usual September slot last year, it’s back at its traditional June time slot for 2022.
- Trafalgar Square
- WC2 5DN
- Opening hours:
- Times vary
Free UK Festivals and Carnivals
Region-by-region guide to 60+ events
Festival season is back for 2022, following two years of disruptions due to the pandemic. Whether you want to listen to pop, house, rock or jazz music, or carnivals or parades are more your scene, there are free UK festivals and carnivals to suit all tastes – and most are suitable for families. We’ve rounded them up by area of the UK…
As you may know TFL and the Government is looking to scrap bus routes and is sending out this consultation survey beforehand. These cuts will have a detrimental effect on those with impairment and/or are unpaid caregivers, so they may wish to complete this questionnaire for what it’s worth. Users will need to sign up to TFL online first.
Why do you need a Lasting Power of Attorney?
Does the person you look after making their own decisions but want help managing their money? Maybe they can make their own decisions now but want an arrangement in case they can’t in the future. Without a Lasting Power of Attorney (LPA) your family may need to go to Court. This can cause lots of hassle, delay, and expense.
There are 2 types of Lasting Power of Attorney; finances & property matters and decisions about health and care.
Why should you do it now?
- 1 in 3 of us will suffer dementia
- Many of us will retain mental capacity, but will physically struggle to manage our affairs at some point in our life
- Being married or asking your chosen person to act for you is not enough – you need to legally give them the power to help you
- If you leave making your Power of Attorney until you need it, it will be too late.
Carers Centre Partners
The Carers Centre Tower Hamlets is pleased to work in partnership with respected Law firms to provide carers with affordable support with LPA.
Jones Whyte are a Glasgow based multi award winning Solicitor firm and the reigning Law Firm of the Year 2021
- They prepare thousands of Powers of Attorney every year
- Have partnerships with many major national charities
- They offer competitive Power of Attorney fees £349 + vat
You can find our more about Jones Whyte here Power of Attorney – Solicitors Glasgow | Jones Whyte Law
Duncan Lewis Solicitors – “We believe in access to justice for the most vulnerable in society and do everything we can to ensure legal advice and support is available for those who need it most”.
Duncan Lewis Solicitors are a national firm with offices locally.
- They prepare thousands of Powers of Attorney every year
- They are available for face-to-face appointments at their local office (1 Kingsland High Street, Dalston, Hackney, London, E8 2JS) or surgeries at the Carers Centre if requested
- They offer competitive Power of Attorney fees £350 + vat
Carers Centre staff can refer you, contact us on 0207 790 1765 or at email@example.com
You can find out more about Duncan Lewis here https://www.duncanlewis.co.uk
Most solicitor firms support with LPA and carers are under no obligation to use either firm listed above and are free to seek support from any firm they choose.
What is I do not want to pay for support with LPA?
We also provide workshops and information for those who want to set up an LPA themselves, many people set up LPA without legal support. You can check our Calendar or give us a call for updates on our latest workshops.
You can also see the information links below for information.
Call us on 0207 790 1765 or email firstname.lastname@example.org to find out more about LPA.
Check out a new free course that has just been launched that focuses on carer wellbeing. It is called ‘Physical activity for health and wellbeing in the caring role’ and has been kindly endorsed by the Carers Trust. The course is 6 hours in length and learners can achieve a ‘badge’ on completion of the end quiz, and this can be added on a CV to evidence their learning/continuous professional development. We hope that it will be helpful to those working with carers, including carer centre staff, those supporting carers less formally and importantly carers themselves!
A carers guide to home fire safety
A new video resource has been launched on the London Fire Brigade website to help carers learn how to keep people that receive care safe from fire.
Sadly, around one third of those here who die or are severely injured by fire are in receipt of some form of care or support. If you are a formal (domiciliary care worker, support worker or clinician) or informal carer (family member, friend or neighbour) and are caring for someone in their own home, this new resource will help you identify fire risks and show you what you can do to reduce them. There is also more information available on the website around fire safety and prevention.
WALKING ALONE? REMEMBER THESE 10 TIPS
1) Plan Your Route
Make sure you plan your route ahead of time. If you are walking in an area you are not familiar with, this can help keep you from getting lost. You will be able to walk with confidence. If you do get lost, don’t wander aimlessly, find a gas station, supermarket, or fast-food restaurant where you can ask for directions.
2) Make Sure Someone Else Knows Your Plans
Don’t go out when it is dark without telling someone, even if you are just taking the dogs out for a walk around your neighbourhood or walking home from a friend’s house nearby. It may seem paranoid, but in fact, knowing someone knows where you are can be reassuring and help you feel safe. If you fall and hurt yourself or run into trouble, and someone knows where you are, they can send help if you don’t arrive at your destination on time.
3) Always Carry Your Phone with You
Always carry your phone, but not for music or to make social calls as your walk. Your phone can be a lifeline if you see something suspicious or worse if something happens to you. Download a safety app on your phone, so you’ll be able to discreetly alert the authorities if you feel threatened or see something suspicious.
4) Avoid Suspicious People and Areas
Areas that are dark, deserted, or out-of-the-way, such as an alley or a parking lot, can be riskier than a well-lit area full of people. Stick to busy, lighted paths, to minimize the risks. Also, walk mainly in familiar places where you are known. That way, if you feel like a suspicious person is following you, you can always duck into a store you know or knock on a neighbour’s door. Avoid empty streets and pathways with thick shrubbery.
5) Keep Your Hands Free
Except for a flashlight and one of the items discussed below, keep your hands free. If you are carrying anything, put it all in one bag or backpack. This will make it easier for you to react if you notice someone following you. In a dangerous situation, carrying too many bags can keep you from moving as quickly as you can if your hands are free or if you only have one bag.
6) Carry a Non-Violent Deterrent
In addition to a flashlight, carry a non-violent deterrent such as a whistle, mace, or pepper spray. A whistle will help you alert others and call them to aid you if something is wrong. The loud noise may put off attackers, and they’ll move on to find someone else. Mace or pepper spray can give you enough time to evade a potential attacker, and in a pinch, a flashlight can be used as a weapon. Make sure you know how to use the mace or pepper spray to get its full effect.
7) Wear Reflective Clothing to Prevent Accidents
When it comes to personal safety, it’s not just about suspicious people. Areas with low visibility can be prone to accidents. Reflective clothing allows bikers and cars to see you as you walk along. A flashlight or headlight can also help drivers see you if there are dark stretches of road on your route.
8) Take a Self-Defence Class
When fighting off something as an assault, the element of surprise can work in your favour. If you regularly walk alone, take a self-defence class. You don’t have to become a black belt. In fact, it’s probably better to learn something like Krav Maga, which has been popular for self-defence. The idea is to disable your attacker enough for you to get to safety, and a class focused on self-defence will help give you those survival skills.
9) Remove Any Distractions
Keep your phone in your hand in case you need to hit the panic button on your safety app, but don’t let it distract you. When walking alone at night for exercise, music can be motivating and energizing but also distracting. You may not hear someone driving or walking up behind you. Avoid wearing headphones or talking on your phone as you walk.
10) Trust Your Gut
When walking alone at night, trust your gut. If you feel like an area or situation may be dangerous, don’t wait around to find out. Stop and scan your surroundings if you think someone is following you. If you are being followed, walk as quickly as you can to a well-lit public place. You can wait until you feel safe, or call a friend, a taxi, or an Uber to help you get safely get home at night.
Following these personal safety tips will help keep you stay safe when walking alone. Always be aware of where you are and alert to suspicious activity.
Domestic Violence Duty Line: 020 7364 4986 between 9am – 5pm.Victim Support: 020 7364 2448/7957
Just wishing everyone a peaceful, safe and week and remember if you need information and advice from the Carers Centre just email email@example.com
Carers Wellbeing Academy Manager
Monday - Friday – 9.30am – 5pm
Saturday and Sunday – Closed